Bio bank workshop

On behalf of the WAHTN, we would like to thank all who participated in the workshop on the 29 Oct 2018.  The minutes and slides presented at the workshop are attached.

In order to further develop a plan for a centralised biobank in WA, we would like to invite interested members to join one of the six working groups (Governance, Ethics, Quality Assurance, Data management, Infrastructure and Funding). The strategic issues to be addressed for each group are attached. We welcome your participation in the next phase of the project even if you were not able to make it to our workshop.

With your help, each Working Group’s task is to address the issues and define actions that need to occur to create the biobank hub in the context of each specific group. The Chair for each working group will be responsible to compile key messages and summarise recommendations, tasks and actions as discrete projects (small/medium/large, short term/mid-term/long term etc). A template is attached for your reference.

Please register your interest here by Wednesday 21 November 2018. We have set a limit of 5 members in each group and this will be in a first-come first-served basis. If you are willing to be the Chair of a particular group, we ask that you include the word “Chair” after your name when registering.

Summary outcome with clear recommendations from each group should be submitted by 16 January 2019. Please note that this is a short term volunteer commitment from now until Jan 2019. Each group is free to meet and/or circulate ideas via emails from November 2018 through to Jan 2019.

Click below for the minutes and slides presented at the workshop.

Biobanking Minutes 20181029

Biobanking workshop attachment 1 20181029

Biobanking workshop attachment 2 20181029

Strategic Issues to address for each working group

Working Group PoP

BHS Biobank

Broadhurst Biobank Meeting 2018

CF Biobank

Diagnostic Biobanks

Eastwood for Biobank workshop Oct 2018

Ethics and Biobanks

Moses_Biobanking workshop

ORIGINI_Biobank presentation_Final

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Strategic Issues to address for each working group:

Funding

Provide recommendations on the following:

Source of long term funding streams, ie. potential funding source, donors and financial partners.

Options and different level of running costs (i.e. example of sustainable cost structure?)

Governance

Determine and provide recommendations for an agreed governance arrangement.

Ethics

Provide information to address the following:

Standardised consent toolkit for Biobank (Broad-based consent form, consent for linking patient data)

Privacy

Ethics Defensible plan

Consumer and public engagement

Quality Assurance

Provide recommendations on the following:

Determine SOP for specific sample collection, storage and testings.

Data management

Provide specific recommendations on the following:

LIMS for biospecimen related data (meta-data and participant data) and clinical data/medical records.

How to harmonise and curate existing biobank data?

Infrastructure

Provide specific recommendations for:

Space (where?)

Equipment (storage and sample processing)

Staff